I have been reading a new book I ordered thanks to one of the ladies on one of my groups. The author is a neighbor of hers and Believe me this woman seems to know what she is talking about! Some of the things I have read to Scott and afterwards he said when we got back home he wanted to look the place over and find the cameras they had hid and were watching us with to write this book!! The book"fibromyalgia: a comprehensive approach" by Miryam Ehrlich Williamson.
Actually I have read the book clear thru, patially read it thru(you know the parts where you go back and say ....wait did I read that right?) Now I am going through with my ink pen(since my highlighters are all dead) and marking things as I come to them this time, that I either want to remember or that I want to be able to go back and say....see I knew it was the fibro when I told you that before!! Then there are those where we have looked at them and re-read several times the first time going thru and said WOW.....didn't know that but it makes a lot of sense!!
Now don't get me wrong I'm not stupid and I realise with my age that some symptoms could be just from getting older but then again some of these symptoms have been with me too long to blame it on just getting older. I also have an answer for the Doctor who is always telling me that I'm always going to be depressed and i might as well learn to live with it and just keep taking the meds all the rest of my life!! Yes I may have moments, even weeks of some depression, but you show me someone who suffers from pain who dosen't suffer from depression!! I do not plan on staying in depression all my life, he makes it sound like I had just better plan on being a psycho case the rest of my life and I don't plan on that happening!!
In fact my regular Doctor and I had a good session the other day and the neurologist and I had a good session the day before, they both are thinking we are on the right track and are hoping to see changes soon. They took me off of Celebrex and gave me some new meds that we hope once I get up to the appropriate dose for me will stop the massive spasms and restless legs that I seem to have all over my body. Scott says some nights I almost knock him out of bed with the spasms and I have knocked him upside the head a few times. I had a really bad spasm last night that jerked my whole body and made my hip where I couldn't move it. All I could do was cry and Scott had to help me move the leg so the hip was back in place so it would ease up. When I finally was able to get up I was very cautious as i wasn't sure if the hip would hold me but I needed to get up and take some meds...bad!! My whole body has increasingly let me know how much of it was involved with the spasm.....it is going to be a very long day I have an idea on Wed March 1st.
Okay better head for bed again and try to get more sleep.
Tuesday, February 28, 2006
Monday, February 20, 2006
THE GRANDKIDS
Alexis-8yrs old, Jerrica-3 1/2 yrs old, Michael-1 yr old, Julie 2 1/2 yrs oldAren't they cute and sweet looking!!
Thursday, February 16, 2006
Surviving yet another Valentines Day
Well, these last 2 weeks have been rough in a lot of ways.....On Feb 8th recieved word that my niece Roxanne who is in the Army was in a helicopter during a night training flight at Yakima Training Center, Washington. to quote her mom "Roxanne has a concussion and a compression fracture of the spine, whiplash and various technicolor bruises, cuts, nicks and scratches." That was a big scare but now it is still a concern as we know the compression fracture is at T7 of her spine which is just about the middle of the back!! Also it is hard on her as Roxanne is and always has been a very active person physically. The need to stay in Washington state till the investgation is over then they will be going back to Fort Drum in NewYork where they were stationed, and we will see what the Dr. there say about what needs to be done further.
Then Feb 14 has been a hard day for my family since 2000 when my sister Jane passed away from tongue cancer. Scott had even arranged for my Valentines to be on Monday the 13th so we could enjoy it. Now this year we have had another tragedy added to the Valentines Day and that is my cousin Mark in California, he and his wife Karen lost their oldest daughter Tiffany. It was thought that originally it was suicide but now it is uncertain until autopsy is finished.
I know I've been taught that God will not give us any more than we can handle as Christians but you wonder sometimes when things like this seem to pile up on you!! I've really wanted to sew or accomplish something over the last month or so but just have had no energy and with the arthur and fibro I have really been hurting. I did find a pamplet that I believe explains Fibromyalgia better than any I have seen so far If you know of someone who has fibro and want to help them it is worth reading!!
http://www.arc.org.uk/about_arth/booklets/6013/6013.htm
Well, it is almost 4am and we are up because the neighbors downstairs had their smoke alarms go off but fire department couldn't find anything. Now we have to begin to come down again so we can sleep again.
Then Feb 14 has been a hard day for my family since 2000 when my sister Jane passed away from tongue cancer. Scott had even arranged for my Valentines to be on Monday the 13th so we could enjoy it. Now this year we have had another tragedy added to the Valentines Day and that is my cousin Mark in California, he and his wife Karen lost their oldest daughter Tiffany. It was thought that originally it was suicide but now it is uncertain until autopsy is finished.
I know I've been taught that God will not give us any more than we can handle as Christians but you wonder sometimes when things like this seem to pile up on you!! I've really wanted to sew or accomplish something over the last month or so but just have had no energy and with the arthur and fibro I have really been hurting. I did find a pamplet that I believe explains Fibromyalgia better than any I have seen so far If you know of someone who has fibro and want to help them it is worth reading!!
http://www.arc.org.uk/about_arth/booklets/6013/6013.htm
Well, it is almost 4am and we are up because the neighbors downstairs had their smoke alarms go off but fire department couldn't find anything. Now we have to begin to come down again so we can sleep again.
Tuesday, February 14, 2006
Very good first part of the week
First of all I should be in bed but tonight is one of those nights where I slept real hard for about an hour and now I'm wide awake!!
The weekend was looking like it was going to be rather dull. I did some cleaning, but for a change not in the hobbyroom. I was getting the rubbermaid/plastic bowls and containers back together where they belong and the doors where they will shut again......you know, that forever battle, where you say I am smarter than the plastic ware.....I will win!! It's amazing how once you go around the kitchen and find all the pieces, what a difference it makes in the looks of the kitchen clutter!! Then it just took some minor putting up of things and you could actually find cabinet tops in our small kitchen again......wow!!
I also got the coffee pot that my mom had brought to me that my dads mom had given them as a wedding gift, washed up and ready to use. It is old fashion compared to the ones now!! I nor Scott drink coffee but with it being ceramic I believe that I can use it to hold hot water for tea......now I will get in and make me a tea cozy for it then I can use it in the hobbyroom when I'm in there.
On Sunday I had several goals and it was very hard to stay on just one cause I kept having to get into the closet to put up things or get out things and I needed to actually go deeper into the closet stuff and get my small bookcase out to use in my bedroom. BUT....I needed to get certain things together with other things that were already in containers that were in the closet so I could get up to the computer and sewing machine here in the hobbyroom. I hate it when it is hard to decide which needs to be done first!!
Well, my son called and said he and family would be by sometime afternoon or evening so I thought.....okay I will get into the closet and get that done so i can get things put back into the closet before the kids get here. Then I find out that only the youngest, Michael is coming, he just turned 1 the first of Feb. Okay not problem He won't matter as much if I have to I can shove things in my bedroom.
WRONG.....when I hear them coming up the stairs I hear the girls talking so it is hurry hurry and stuff things back into the closet.....infact while the kids are knocking and hollering Nana, I'm hollering back Just a minute and having to get things in the closet so I can even get to the door!! But that's okay it all went in and I got my hugs and a bigger suprise as my daughter had come home at the same time they were coming in so I got to see both of my kids as well as my grandkids. YEA!!!
Rusty was doing some electical work for us so he started that while the kids ate the chicky nuggets they's brought with them and frenfries. Then we talked and played. Mandy my sons wife helped with the kids some and "helped" my son some. BUT.......they had also brought me pictures of all the kids that are around here!! So as soon as I can get it scanned I have a new pic to put up of Grand kids. We have Alexis(Mandy's 8yr old) Jerrica 31/2 yrs old, Michael 1yr old and Julie 21/2 yrs old. Very good pic of the kids, I am very happy to get a recent one.
Before they left I had my son see if he could get the knot out of my back so my rib would go back into place, which involves me laying on the floor and him having to do a lot of rubbing and massaging. The kids have never been around when he has had to do this before we realised that night......boy did he have help!! I think I felt everyone of the kids rubbing at some point!! The funniest was however, when Julie the very bold "tank" of the group got down almost on her head and pulled my hair back and said.....whacha doin Nana? We got to laughing so much it was hard to finish!! Her nose was almost on my nose and I could see her feet but she was almost on her head, and the biggest grin you can imagine!!
Okay time to get off and try to sleep....
The weekend was looking like it was going to be rather dull. I did some cleaning, but for a change not in the hobbyroom. I was getting the rubbermaid/plastic bowls and containers back together where they belong and the doors where they will shut again......you know, that forever battle, where you say I am smarter than the plastic ware.....I will win!! It's amazing how once you go around the kitchen and find all the pieces, what a difference it makes in the looks of the kitchen clutter!! Then it just took some minor putting up of things and you could actually find cabinet tops in our small kitchen again......wow!!
I also got the coffee pot that my mom had brought to me that my dads mom had given them as a wedding gift, washed up and ready to use. It is old fashion compared to the ones now!! I nor Scott drink coffee but with it being ceramic I believe that I can use it to hold hot water for tea......now I will get in and make me a tea cozy for it then I can use it in the hobbyroom when I'm in there.
On Sunday I had several goals and it was very hard to stay on just one cause I kept having to get into the closet to put up things or get out things and I needed to actually go deeper into the closet stuff and get my small bookcase out to use in my bedroom. BUT....I needed to get certain things together with other things that were already in containers that were in the closet so I could get up to the computer and sewing machine here in the hobbyroom. I hate it when it is hard to decide which needs to be done first!!
Well, my son called and said he and family would be by sometime afternoon or evening so I thought.....okay I will get into the closet and get that done so i can get things put back into the closet before the kids get here. Then I find out that only the youngest, Michael is coming, he just turned 1 the first of Feb. Okay not problem He won't matter as much if I have to I can shove things in my bedroom.
WRONG.....when I hear them coming up the stairs I hear the girls talking so it is hurry hurry and stuff things back into the closet.....infact while the kids are knocking and hollering Nana, I'm hollering back Just a minute and having to get things in the closet so I can even get to the door!! But that's okay it all went in and I got my hugs and a bigger suprise as my daughter had come home at the same time they were coming in so I got to see both of my kids as well as my grandkids. YEA!!!
Rusty was doing some electical work for us so he started that while the kids ate the chicky nuggets they's brought with them and frenfries. Then we talked and played. Mandy my sons wife helped with the kids some and "helped" my son some. BUT.......they had also brought me pictures of all the kids that are around here!! So as soon as I can get it scanned I have a new pic to put up of Grand kids. We have Alexis(Mandy's 8yr old) Jerrica 31/2 yrs old, Michael 1yr old and Julie 21/2 yrs old. Very good pic of the kids, I am very happy to get a recent one.
Before they left I had my son see if he could get the knot out of my back so my rib would go back into place, which involves me laying on the floor and him having to do a lot of rubbing and massaging. The kids have never been around when he has had to do this before we realised that night......boy did he have help!! I think I felt everyone of the kids rubbing at some point!! The funniest was however, when Julie the very bold "tank" of the group got down almost on her head and pulled my hair back and said.....whacha doin Nana? We got to laughing so much it was hard to finish!! Her nose was almost on my nose and I could see her feet but she was almost on her head, and the biggest grin you can imagine!!
Okay time to get off and try to sleep....
Monday, February 06, 2006
Another Clean up Weekend
This last weekend was a clean up weekend. Scott worked so I worked on my part of the hobbyroom.Ya know how you can have things in a "neat" pile and all of a sudden something happens and you have an avalanche? I just do not understand how that happend, I mean after all the pile was only about 2 foot high and had books, material and a plastic bag or 2 in it! So I can now see the top of the sewing machine, most of the counter here and the floor in front of all of this is almost there. Actually the floor will be done as soon as I put up some of the small containers that are used like when I'm going somewhere and need small containers with handles on them.....thank you Rubbermaid and Sterilite.
I had also picked up some other beads and things for embellishments so found homes for them. My mom had given us some small glass bottles, you know the ones that you get when you get a gift with several different jellies in them......hey it works. Now that I have a surface to work on again I hope to begin a couple of projects, and how fast they get done or how much they get worked on will depend on how this spell fibromyalgia continues this time. Right now I have it switching sides, it use to bother just my left sidebut now it is beginning in the right side, starting as the otherside did in the neck and shoulder.
I had also picked up some other beads and things for embellishments so found homes for them. My mom had given us some small glass bottles, you know the ones that you get when you get a gift with several different jellies in them......hey it works. Now that I have a surface to work on again I hope to begin a couple of projects, and how fast they get done or how much they get worked on will depend on how this spell fibromyalgia continues this time. Right now I have it switching sides, it use to bother just my left sidebut now it is beginning in the right side, starting as the otherside did in the neck and shoulder.
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